12 May2014May 12, 2014
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The Saoirse Foundation & Trinity College Dublin, Launch Study on Rare Diseases

The Saoirse Foundation in partnership with a team of researchers led by Dr Honor Nicholl, School of Nursing and Midwifery Trinity College, Dublin is pleased to announce a forthcoming research study that will investigate the information needs of parents of children with rare diseases (The RD-WIFI study). All parents and guardians are invited to take...