The Saoirse Foundation in partnership with a team of researchers led by Dr Honor Nicholl, School of Nursing and Midwifery Trinity College, Dublin is pleased to announce a forthcoming research study that will investigate the information needs of parents of children with rare diseases (The RD-WIFI study).

All parents and guardians are invited to take part in the study which will start on May 27th 2014 with a focus group.  The major part of the study will take place in June 2014 when a questionnaire will be released which can be completed online or by post.

To participate and have your opinion heard please contact The Saoirse Foundation on info@saoirsefoundation.com or call 083 0044444, we’d love to hear from you.