The Saoirse Foundation in partnership with a team of researchers led by Dr Honor Nicholl, School of Nursing and Midwifery Trinity College, Dublin is pleased to announce a forthcoming research study that will investigate the information needs of parents of children with rare diseases (The RD-WIFI study).

All parents and guardians are invited to take part in the study which will start on May 27th 2014 with a focus group.  The major part of the study will take place in June 2014 when a questionnaire will be released which can be completed online or by post.

To participate and have your opinion heard please contact The Saoirse Foundation on or call 083 0044444, we’d love to hear from you.





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